Barry was born on March 30th, 1994, in Walnut Creek, California and passed away on September 29, 2007. He was the son of Cindy and Richard and the younger brother of Brittany and Jamie.
Barry suffered from a rare genetic disease called Fanconi anemia, which leads to bone marrow failure. In order to come down with Fanconi anemia, a child must be born to parents who both carry the same genetic defect. The odds of any one person having the defect are one in a million, and the odds of both parents carrying it are immeasurable. And even when both parents do carry the defect, it is extremely rare for their child to be born with the condition.
Barry was a student at Paxson Elementary School in Missoula, Montana, where he lived with his family, but relocated to Seattle in August 2005. He underwent a bone marrow transplant in September 2005, and at the time these pictures were taken was still recovering from the transplant procedure and waiting to see if it would be successful.
Barry loved to receive mail, and as word of his enthusiasm for letters and other messages filtered out to the world the mail poured in. His apartment was covered with cards and letters of encouragement from people around the country.
Barry had an amazing attitude, said his mother. His wonderful disposition carried the rest of his family through the rigors of his treatment. “I don’t know how I would have coped if Barry weren’t so positive,” she said.