Jordan was born on December 19, 2000. He is the son of Robert and Jacqueline, and the older brother of four-year-old Katie. Jordan suffers from Infantile Tay-Sachs Disease, the result of a bone marrow transplant. He is one of the oldest living children with his condition.
Jordan is active in Cub Scouts, and in his church. His mother says he “is filled with exuberance for life, and enjoys horseback riding and playing in the pool. He has always enjoyed kicking and playing in the water, and had a dream come true last summer, when he went swimming with a dolphin.”
Jordan’s family would like acknowledge the help and kindness of the Cure Tay-Sachs Foundation, the DUKE PBMT Family Support program, and NTSAD.
who we serve
We serve families with children, ages 18 & under, facing life-threatening conditions. We also serve families with terminally-ill parents nearing end-of-life, who have children ages 18 & under. Learn more