Olivia W.
in honor of Olivia W.

Olivia W.

Little Olivia came into the world on September 27, 2012, and has struggled heroically ever since. She was born with an array of health challenges that includes, among other things, partial trisomy 4P, a severe sleep apnea, aspiration into her lungs whenever she eats, and hypertrophic cardiomyopathy. She will have cognitive and physical developmental delays of uncertain extent.

“Olivia is such a sweet, easygoing baby, such a gentle baby,” her mother says. “She is also such a trouper, a fighter.” Her family fights just as hard for her. Watching the constant “prodding” every day in the hospital, with needles, feeding tube, Continuous Positive Air Pressure (CPAP) machine, they resolved “to provide her with the best quality of life and to make sure she is comfortable, to make sure she is never in any pain. We want to be able to include her in our family activities, to be able to be held by her sister and brother, to just be with her family.” Once that resolve was in place, they were able to bring Olivia home “just before Christmas. It was a special Christmas for us, being able to be all together.”

Now, Olivia is gaining weight and growing, while being tube-fed. “She is a real fighter!” her mother exclaims.

Olivia’s family would like to thank the “4P Support Group—they are a support group for those affected by 4P minus as well as any 4P-related conditions.”

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