in honor of Trent


Trent was born on January 29, 2008, with Myotubular Myopathy. He is the younger brother of Kaylee and Sean. His mother says that Trent has a tremendous “will to live, and to overcome obstacles. When faced with obstacles, he proves to be stronger than his disease. He never fails to lift me up when I think I am here to lift him up.”

Trent’s family would like to thank the Information Point for Cetronuclear and Myotubular Myopathy, The Myotubular Trust, and the Joshua Frase Foundation.


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