Ava Grace W.

Born on September 5, 2010, to Julie and James, Ava Grace suffers from Aicardi Syndrome, a rare genetic disorder that causes hard-to-control seizures and severe developmental delays. Her mother and father describe her as a “fighter” and an uncommonly expressive little girl. In the company of other babies her age, she is the only one “babbling and talking away” while her contemporaries stare at her, bewildered and impressed.

Ava Grace’s parents would like to thank aicardisyndrome.org for much-appreciated help and support.