Born on July 27, 2017, with chronic lung disease, Jon-Jon is dependent on a feeding tube due to aspiration. He has been hospitalized repeatedly for collapsing lungs.
“Jon-Jon is a fighter!” His mom says. “He has been fighting from the moment he entered this world and was put on a ventilator.” He stayed in the hospital from birth until the following December 9, then went home for what proved to be a mere two weeks. “We got a glimpse of our life when he was re-admitted and put back on a ventilator.” Since then, Jon-Jon has had multiple surgeries and hospital stays, “where we almost lost him again and again.”
With Soulumination’s photos, “we are creating memories and capturing just the beauty of the moment.”